I’ve gotten a few notes from my past few posts, and just wanted to take a stab at clearing the air quickly.
At this point, what I’m writing is very emotionally charged. I know that I’m saying dark things, but the reason I’m doing this is to document the journey I’m on and being real about it. I mean no offense to anyone involved in the Deaf community, and I understand their perspective that there’s nothing wrong with them that needs to be fixed, they’re just different. I find that perspective to be very reassuring. I apologize to anyone who takes offense at my visceral reactions to what’s going on with Alex and would hope that they would understand that all rationale is generally out the door when you’re talking about your children, but again – my goal is to document the journey, and that will almost certainly involve change. I want it all here as an honest representation of that journey. I initially thought I would write just a private journal, but decided to publish it in the hopes that, along the way, it might help someone else in some capacity or let our friends and family know what’s going on and how we’re doing.
On another note, if I seem gung-ho on cochlear implants at this point, it’s because they represent the ability for myself and Shannon, as parents, to give our child all that we can. We know that it might not work. We know that if it does, it’s not a “cure” for his hearing loss. We’re not squarely on that path yet. Alex’s viability as well as the testing that can be performed to see how well he might take to them will absolutely be major considerations, and we’ve been very happy with what we’ve heard about the Total Communication / ASL Early Intervention route as well. Our happiness or love for our child doesn’t hinge on him getting cochlear implants, just as we know that his love for life and identity aren’t dependent on them (or any other medical device) either.
I hope this gives some clarification on where I’m coming from. So far, the story has been written in a pretty bleak way, but that’s because this is all still very fresh for me. Believe me when I say that Shannon and I have had many conversations about how we can’t wait to look back on this period and roll our eyes at ourselves for worrying so much about our beautiful son.